Supporting MS during the Month of May
For the month of May, Amanda's Bridal & Tux wanted to promote awareness for MS (Multiple Sclerosis). Many people don't fully understand this disease and it can be difficult for those families who are affected. MS is an unpredictable, often disabling disease of the centeral nervous system that disrupts the flow of information within the brain and between the brain and body. MS tends to affect people's motor skills making daily tasks difficult. There is no cure, only treatments.
Here at Amanda's we choose monthly charities that are close to our hearts or that have affected us personally. Our amazing stylist Tobie has experienced this disease first hand with her mom. Tobie's mom Regina was diagnosed with MS in 1985, a year before Tobie was born.
Growing up, Tobie has seen the ups and downs MS can cause in a person. Although everyday tasks became more difficult and unpredictable, Regina managed to raise her family with positivity, love and strong family values.
When Regina was unable to go to work, that didn't stop her from achieving goals and pursuing the things she felt passionate about. Her passion included helping others and music. Prior to her diagnosis, she was a licensed cosmetologist and owned a bar she named Reggie's Pub. In the mid 90's, she became a licensed irodologist and herbalist. There were few treatments at that time for MS which lead Regina to take a natural path in alternative medicince. She created an informational series of cassette tapes on the human body, all produced by Tobie's dad, which was stocked on the shelves at local health and vitamin stores. She is also a published poet with her gentle story of "Ode to the Sea".
Regina and her husband Cary composed numourous pieces of music, with her on the keyboard and him on the Bass guitar, both singing their hearts out to each other. Doing local gigs on the weekends at countless bars and clubs for different events.
Regina is still fighting the battle with MS as well as Breast Cancer today. Anyone who has ever been lucky enough to be around her, would never know she feels sick. Every Doctor who comes in contact with her is always amazed and inspired by her beautiful personality. Between weekly Chemo treatments and struggles with MS relapses, she continues to fight the battle, sing her favorite songs, smile through the pain, and live her life to the fullest.
"She has never given this disease power. Not once have I seen her get angry, cry or complain that she has a disability"
"Regina got Tobie this bear because she oversees her treatment and care at her nursing home."
"I don't remember my mom not being in a wheel chair, it felt normal to me and the best part was riding with her when we would go out."
Her faith in God has been her rock, and she says she cannot wait to meet him, dance with him, and finally be with her husband again. On her worst day, if you ask her how she feels, her response is "Groovy" a true hippie at best. If anyone has been lucky enough to meet Regina then they have learned that life is a beautiful struggle. Live and love as much as you can, and never stop singing.